Cardiac Risk in the Young - CRY - was founded in May 1995 by Alison Cox. For four years, the head office was based in a private home, which meant that the charity escaped the majority of costs normally associated with the running of an office. However thanks to the incredible efforts of our fundraisers CRY moved into an office on a small industrial estate in 1999.
Our media profile and volunteer base has rapidly grown and we are developing new areas of work. We now have 6 full time and 7 part time members of staff, and a dynamic website that regularly gets over 1000 hits per day. CRY also funds a Research Fellow, training under Dr Sanjay Sharma, consultant at Lewisham University Hospital. We have also collated a book entitled ‘CRY's contribution to Research’, of all the research articles that we have contributed to.
Our counselling training programme for CRY Bereavement Supporters is funded by a grant from the Department of Health. This grant also funds our CRY Surgery Supporters Club, for young people who have had potentially life saving surgery (excluding transplant).
The CRY Centre for Sports Cardiology is based at The Olympic Medical Institute, and was launched at a reception for MP's in April 2002. This initiative had such a tremendous response from MPs that it lead to the instigation of the Cardiac Risk in the Young All Party Parliamentary Group Chaired by Kevan Jones. This APPG now has over 50 members.
The Secretary of the CRY APPG - Dari Taylor MP - dedicated her Private Members Bill to the Cardiac Risk in the Young (Screening) Bill. This bill called for more widespread screening of young people to identify previously undetected heart conditions. After much debate, Dari Taylor MP withdrew her bill when the Health Minister promised a new National Service Framework (NSF) chapter, which would include guidelines for tackling the issues surrounding young sudden cardiac deaths.
After a consultation period of several months, the new NSF chapter on Arrhythmias and Sudden Cardiac Death (chapter 8) was published in March 2005.
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